The project so far

 
 
 

We are experimenting with research!

 

our work is led by people with learning disabilities and autistic people - they decide the most important questions for our project to ask and how we should ask the questions.

we work in a flexible way and we are learning new ways of seeing, being, doing and relating.

 

Find out more…

 
 
 
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october 2018

 

The team moves in to the hub! a very exciting moment. the core team (left) work alongside the project team, who you can meet here on the heart n soul website!

both teams include autistic people and people with and without learning disabilities from all sorts of professional backgrounds including art & design, science, health and technology.

to mark our arrival we put on our first public event and installation at wellcome collection! robyn, catherine, tilley and pino from the core team hosted a ‘chat up’ event exploring one of the big questions from the project - what is normal?

we met lots of new people and heard amazing and thoughtful answers to the question.

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november 2018

 

the world of research is new to Heart n soul, but we are working with some amazing academics from our core team.

They introduced research ‘methodologies’ to us (different ways of approaching research). we sketched out our own accessible diagrams to help us remember them better.

january 2019

 

To introduce ourselves to staff at wellcome we set up a live heart n soul radio station in the building and invited people to chat with us on air and request their favourite songs.

we also asked them questions like ‘what makes you happy?’.

February 2019

 

we had a lovely launch party with friends and collaborators. the core team each said something about the project and people came away from the evening feeling inspired and excited about the possibilities ahead of us.

participants and artists from heart n soul came in to help us explore ideas around productivity and human value.

we used art, discussion and theatre sessions to get talking about what makes us feel productive and valuable in our lives.

March 2019

 

our first research questions to the outside world! we asked you what productivity means to you and we got hundreds of responses back.

We are looking at the results at the moment and we’ll share what we find out later in the project.

we learnt a lot from doing our first survey. the process gave us some great ideas for how to build our very own accessible survey website called ‘heart n soul asks’!

we decided it was important for our surveys to feel human and allow us to ask questions directly to the public with videos. we also decided the public should have the choice to respond in different ways, including video, audio and images.

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April 2019

 

Robyn threw her first music jam in the hub! jams are now a monthly event in the hub for wellcome staff and heart n soul artists and participants.

these events are a chance for autistic people and people with and without learning disabilities to spend time with each other doing something creative. for robyn, ‘This is a place where everyone is equal’.

May 2019

 

starting to think about our next research questions, pino and robyn hosted ‘tea parties’, small events where people with learning disabilities and autistic people can discuss what questions they would like to ask the public (and drink tea of course).

pino hosted people from heart n soul, stay up late and camden disability action at the hub and robyn decided to host an online discussion with autistic people who either don’t live in london, find social situations hard or are non verbal. robyn sent everyone their very own heart n soul at the hub mug in customised boxes to make them feel really included in the project.

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June 2019

 

Working with the Helen Hamlyn Centre for Design, four Heart n Soul artists and participants chose something in their lives to redesign.

Their ideas included a can opener, the disability freedom pass, hospitals and the tube.

We displayed the ideas at Wellcome Collection for three months and received hundreds more ideas from the public and learning disability groups that we invited in. The next step is looking through them all and bringing the ideas to life in 3D!

 
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June 2019

 

a new group of co-researchers is formed! heart n soul artists and participants self-selected to be heart n soul at the hub co-researchers. together with academics researchers they will becoming up with questions to ask the public via our accessible ‘heart n soul asks’ survey website.

There is immediately so much to discuss! starting with the question: what is research and why are we doing it?

 
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